What patients say

 THE PATIENT EXPERIENCE OF SORATINEX

After my experience of the treatment, I would highly recommend Soratinex to anyone with plaque psoriasis

DeanTootell Wedding 

Dean Tootell, 30, from Colchester, Essex with wife Kristen.

After serving nine years in 7th Parachute Regiment Royal Horse Artillery as a bombardier, I was given a medical discharge from the army last year due to psoriatic arthritis as I was unable to perform to the high standards that were required of Airborne forces.

Since 2014, I have been receiving treatment for psoriatic arthritis and plaque psoriasis which have included Methotrexate, Sulfasalazine, steroid injections and Dovobet. Out of all the treatments I have received, the steroid injections and Dovobet were the only ones to provide short term relief, but they are not solutions for the long run due to the steroid element within the treatments. I believe the next step will be biologics, so we will see how that goes.

In the meantime, I heard about some trials last year of a treatment for plaque psoriasis which I was keen to take part in and seeing as I suffer from that too, I applied to take part. The trials were for Soratinex and they were conducted by Professor Antony Chu in London. I began the trial but had to drop out as I wasn’t able to attend all the assessments, so I am not included in the results.

I had psoriasis around my belly button, my right calf and some minor areas on my scalp, ears and round the eyes. Even though I couldn’t finish the trial, I did complete the course of treatment and it was fantastic.

My plaques disappeared and I have stayed clear for around about a full year. Only now is it reappearing in a very small way and so I have ordered some more of the treatment to take care of it again. 

I have never worried too much about the plaques – I just try to get on with things. But before I started using Soratinex I did find it had stopped me from wanting to take my three children to the swimming pool - they are 11, four and two - as I would be spending a lot of time in the shallow end with my two youngest and my patches are easily seen.  

Nobody made a direct comment to me about my psoriasis but I have seen people taking a look and talking among themselves which can be awkward at times. But I can totally understand as public awareness about psoriasis isn't so great and some may worry it could be contagious. It’s not their fault; it’s just one of those things. After my treatment in 2017 I don’t have to worry about that now. We’re back in the pool and I’m enjoying being clear.

After my experience of the treatment, I would highly recommend Soratinex to anyone with plaque psoriasis.

 

My knees are now 99 per cent clear, my elbows and hands about 75 per cent, so I’m really pleased and now just use the Soratinex cream and oil when I need to.

Ali Waring Professional Headshot-must be creditted- Reduced

 Photo:www.honeydewmoments.co.uk

Ali Waring, 56, a part-time teacher from Romsey, Hampshire.

I’ve had psoriasis on my knees and elbows since I was 22. I can’t believe I’ve just written that number. That means I’ve now had it for 34 years. I can’t believe that number either.

Over the years, I’ve tried Dead Sea salt baths, emollient creams, E45, baby creams, vitamin creams, steroid creams, butters, oils, gels, acupuncture, Chinese herbs, dietary changes etc but the psoriasis would change almost hourly and even cool water was dehydrating for it. It continued to produce constantly-changing dry, flaky scales. It has never itched but sometimes in a dry winter it has cracked or bled.

I learned to deflect the comments, the concern, the looks, and carried on applying the latest cream I’d bought. I had pedicures instead of manicures.

I consulted a nutritionist, then a well-respected homeopath, then another dietician. I’ve had acupuncture in my toes, vitamin drops, blood tests, stool tests. I’ve eaten lots of grapefruit and tomatoes. I’ve saved up for sunny holidays. I discovered Lush Dream Cream which was mild, soothing, silky and vaguely vanilla-smelling, but of course, no cure.

I started the menopause and noticed a few small pink blisters on the fingers of my left hand. To my dismay, my GP diagnosed psoriasis there too and prescribed Dovonex, a steroid cream.

I visited a traditional Chinese medicine practitioner for weekly acupuncture sessions for 18 months. I changed my diet drastically - cut out alcohol, chocolate, dairy, whole grains, oranges, amongst many other things.  I wrote her many cheques. The psoriasis got very slightly better.

I decided to stop going to her and I continued with Lush Dream Cream only. Then I read an article in The Times about various skin problems including psoriasis, which included a reference to Soratinex. The article mentioned a trial which had had very good rates of success. I discovered more reviews. I ordered the three products from the website: gel, cream and oil. They were simple to incorporate into my daily routine and they smelled OK. I waited.

Then after a couple of weeks, I started to notice a difference. I hugged the thought to myself for a few days, not daring to want to believe the results I was beginning to see. My husband noticed the difference too. I carried on applying the creams. The flakiness subsided. The new skin on my fingers, elbows and knees was pink and healthy.

That was six months ago. My knees are now 99 per cent clear, my elbows and hands about 75 per cent, so I’m really pleased and now just use the Soratinex cream and oil when I need to.

 

‘I was the last person to be accepted on the trials and I was sceptical. Now I just can’t believe how lucky I was.’


  

 Greg Pittard, 47, Commercial Director of Icebox (ice sculpture company) from NW London. 

 

‘I have had psoriasis for 18 years on my arms, chest, back and, recently, my knees. In all, it probably covers about 25 per cent of my body when it flares up. I find it frustrating and upsetting. I’m quite a confident chap and I learned long ago about the importance of inner strength and self-belief so I am not overly-dominated by my condition or what other people think of it.

‘However, I used to love swimming but I stopped about two years ago when I became self-conscious of people looking at me. It was a beautiful summer’s day at Kingston Lido and I was suddenly aware that I was rushing to get into the water and below the surface, and then when I got out I was rushing to cover myself up with my towel. I stopped going after that.

‘I have used steroid-based creams prescribed by my doctor, I’ve spent an awful lot of time trying to find out what causes it and I’ve spent a lot of money being seen privately, but everyone I saw seemed to say the same thing: “We don’t really know what causes it. Here, put some cream on.”

‘I heard about the Soratinex trial from a friend went along and when I was told it involved another cream – as well as an oil and gel – I thought, “Oh, here we go again”. But I used the treatment twice a day as instructed and within days I was seeing an improvement.

‘It is quite a powerful thing to watch something quickly clear up that you pretty much felt was irreversible. The cream is wonderful and it smells great; so is the oil – you almost feel you could eat it! Within a couple of days my red patches were starting to clear up and then I began to see other patches below them, which were areas of normal skin.

‘Then it became less inflamed – that is something psoriasis sufferers will find very important – and my skin calmed right down. It is continuing to improve and I’m seeing clear, good skin. There is about a 70 per cent improvement and obviously I’m hoping it goes to 100 per cent.

‘I’m feeling so much happier and confident about myself. The other day I walked down the street in shorts and a T-shirt and nobody looked at my arms or legs, which they normally would.

‘ I’m single and, of course, psoriasis can affect your confidence – you constantly worry what the reaction will be in intimate situations. But now I’m thinking that, yes, I will be able to look forward to that again. It’s a real morale-booster. 

‘I was the last person to be accepted on the trials and I was sceptical when I walked through the door. Now I just can’t believe how lucky I was.’

 

I feel so much better about myself. In terms of wellbeing, it's like a virtuous cycle.

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Professor Patrick Lavery, 75, with his wife Alma

Retired Chairman of Northgate and Prudhoe NHS Trust, Northumberland, and former trustee for the North East of England on the Council of the NHS Confederation.

 

I developed psoriasis seven years ago during the last months of my wife, Alma's, life.

She had been suffering from multiple sclerosis for a long time and towards the end she contracted pneumonia, her second bout, and it was like an emotional rollercoaster for three months – my three sons and I would be told she wouldn’t last the day, then she would recover, then fall ill again.

I was with her one day and she was livelier and talking about coming out of hospital. I went home feeling much happier but then I got a call at 2am to say she had died. She was 68.

I think the stress and the grief brought on the psoriasis. I used to make light of stress. When I was in the NHS I went into work one morning and heard a group of staff complaining about stress and I went up to them with a poker face and joked: ‘Do you know – I think I might be a carrier.’ Of course, I came to realise it isn’t funny.

At first, the psoriasis appeared as a patch on my stomach but then it spread to my scalp, then my elbow, then both of my shins. It can be very depressing because every time it appears in a new place you ask yourself: ‘Where will it stop?’

My GP prescribed several creams and treatments, including one containing steroids, but nothing seemed to work. I began to reconcile myself to the idea that it would be with me for the rest of my life. Like grief, it never goes away but you get used to it.

Then I read about Soratinex while on holiday and decided to try it. I’ve been using it twice a day for a couple of months. In several places my psoriasis has almost completely gone, in others it has reduced by 40 or 50 per cent and it is gradually improving all the time. It is being a little stubborn on my scalp, but even the persistent patch on my stomach is going away.

It has done much to improve my mood and I tend to feel much better about myself. Then I see more improvement and feel better still. In terms of wellbeing, it is like a virtuous cycle.

I am waiting until my psoriasis is even clearer and then I plan to see my GP and ask what we can do to have this prescribed on the NHS. I understand this is what FRANKL Pharma is aiming for eventually.

I believe this is an excellent treatment and I would like to see as many people as possible benefit from it.

 

‘They told me my last resort was £9,000* auto immune treatment on the NHS but £120 Soratinex had me 100 per cent clear in six weeks.’ 

 

 

Lorna Stewart, 65, from Ballygally, County Antrim, Northern Ireland.  

I had no traces of psoriasis at all until I was 53. We were living in Surrey at the time and my son Ryan had been to visit us for Christmas. He was living in Dallas and we got a call to say he had been involved in a car crash on the way home and was in intensive care.

I had very bad flu at the time but we booked flights and jumped on a plane immediately. When I got home, I had a rash and the GP said it was probably stress and it would go away in a few days.

But didn't - it got worse and I ended up with 12 years of severe psoriasis . After developing the condition, I soon had it on my feet and all over my legs, hands, arms, eyebrows and ears. I became very self-conscious and began wearing trousers and long sleeved tops to cover up.

We used to go on holiday two or three times a year, but I no longer wanted to go as I felt embarrassed by the appearance of my skin. I didn't even want to go to events or to meet people, and this can also have an effect on your partner because their life is being limited too.

During the 12 years, I was treated with a whole range of steroids . I had light therapy and spent thousands on private consultations , herbal remedies - everything. I was put on Methotrexate, a chemotherapy treatment which affects the auto-immune system, and I had to have regular blood checks to test for side effects.

In 2014, my husband Terry and I retired to North Carolina in the USA. While I was there, I went to see yet another dermatologist who said my last resort was Humira, a biologic that suppresses the immune system. She said the cost would be $4,000 a month in the US. [Humira costs the NHS about £9,000 a year]. Worse than that, she said that in rare cases patients had been known to develop leukaemia. I told her to forget it. I didn't wish to swap psoriasis for leukaemia.

We came home to Northern Ireland where I was prescribed Neotigason tablets, which made my hair, eyelashes and my eyebrows fall out. I went to yet another dermatologist and she agreed that only Humira would help. The problem with Humira is you have to inject yourself every two weeks into your tummy.

In the meantime, a friend of mine sent me an article about Soratinex. I thanked her but said I didn't think a cream was going to work for me. By this time, I was resigned to the fact that perhaps Humira was the only way to go. My husband talked me into trying Soratinex as a last resort. I started using it and after six weeks I wondered if I was imaging things - it seemed to be gradually clearing . Then, almost all at once, it cleared up rapidly. I couldn't believe it. It just kept getting better and better and now I have been completely clear - 100 per cent - for about four months and I'm maintaining it with the cream and the oil.

I'm just so thrilled to have the old me back . It is so good to be able to wear shorts, a swimsuit, dresses and short sleeved shirts once again.

(* Correction: An earlier version of this testimonial incorrectly stated that Humira costs the NHS about £14,000 a year. This figure, gleaned from a senior health professional, is incorrect. According to the National Institute for Health and Care and Excellence - NICE - the figure is £9,155. Details here: https://www.nice.org.uk/guidance/ta375/chapter/3-the-technologies#adalimumab.)

 

'I am determined to tell everyone I can about this treatment in the hope that it will work as well for them as it has for me – and recently I have been able to change my hairstyle to suit me rather than the psoriasis!'

 

Sue Pickering, 61, from Northumberland 

I first developed psoriasis at the front of my scalp in my early fifties but it took two years before I was formally diagnosed. I understand that this isn’t unusual.

There were added complications for me because it was linked to another condition called frontal fibrosing alopecia, which meant the worst effects were around my hairline, and this caused it to recede. I also had a 10p coin sized plaque on the back of my hand and while my scalp would periodically improve or deteriorate, that hand plaque was stubborn and just never went away.

I used to be in advertising, recruitment and training and so had to attend meetings and deal with clients. In situations like that I would sometimes feel self-conscious about my appearance and worry whether any flakes were there from my scalp. Eventually, I hanged my hairstyle to cover up the psoriasis at my hairline. Other sufferers will recognise this – psoriasis can have a detrimental effect on your confidence.

After trying all sorts of topical steroids, I was put on Methotraxate about five years ago. I was on that for about two and a half years, then had a gap, and then was put on it again for about 18 months.

Methotraxate is a form of chemotherapy medication although it is given in low doses for psoriasis and is an auto-immune suppressant. It dampened down my psoriasis but it can also leave you vulnerable to illness because it plays with your immune system. Last year, I caught virus after virus and felt so ill that I decided to come off the treatment – and my psoriasis came back in force.

Then I read an article in The Times’ health pages about Soratinex and thought I’d give it a go. The results have been absolutely amazing. It is an eight-week treatment but I saw results within a few days – now even the psoriasis on the back of my hand has gone.

I would say my psoriasis has cleared up almost completely now and because I am no longer on Methotraxate I feel so much healthier. I am relieved, too, that I’m no longer using steroid creams as they were making my skin thinner and thinner.

My husband has noticed a difference in me, too - that I’m feeling happier and healthier. I am determined to tell everyone I can about this treatment in the hope that it will work as well for them as it has for me – and recently I have been able tochange my hairstyle to suit me rather than the psoriasis!

  

'It Is an absolutely brilliant result for me. This stuff is amazing.'

 

John Cowie, 52, from Essex

 My psoriasis arrived from nowhere – there was no family history of the condition and no reason why it should turn up, but it just appeared. That was about 20 years ago and it has persistently affected my knees, elbows and trunk.

Over the years I’ve tried everthing to clear it up – Dovabet, Dovonex, salicylic acid, coal tar, UVB treatment, homeopathic remedies  – but nothing worked.

I never had much of an issue with my scalp, but then it appeared there and I had to use coal tar shampoo. Dithrocream helped for a while, but that stained the bedsheets. Permanently.

I hated all the sideways glances from people if you went into the swimming pool. If I got into a jacuzzi you could just see people thinking ‘Bits are falling off that guy!’ You try not to let it affect your life, but you can’t help it. I sail a dinghy and spend half of my life on my knees and it hurts like hell – the psoriasis plaques split and by the time I’ve finished, there is quite often blood in the bottom of the boat.

Then I read about Soratinex in the health pages of The Times and thought ‘Nothing ventured, nothing gained’. At first I got a slight burning sensation because I might have put on too much gel, so I left it for a couple of days but I saw an improvement anyway.

Then I applied the gel, cream and oil carefully and within days I began to see a real improvement. I began to notice the plaques shrinking and the clear skin below appearing. I had a big patch on my trunk and right hip – about 15cm by 6cm – and very soon all that was left of it was a slight ring at the edges.

My elbows and knees have cleared up and I would say I am now 90 per cent clear and getting clearer. It Is an absolutely brilliant result for me. This stuff is amazing.

Spring and summer are on their way and I can’t wait to get back in my dinghy on my new knees, knowing I won’t have to put up with all that pain. I can’t recommend this treatment highly enough.

  

'I simply could not believe something with so many natural ingredients could have such a positive effect. It has changed my life.'

 

Emma Bird, 57, from Hampshire

 I have had psoriasis for more than 20 years, from my mid-30s, and during that time I have had experience of different kinds and different levels of discomfort, often brought on by stress. I have had it all over my body, on my scalp and in my hair. It has been very unpleasant and upsetting.

I have tried not to let it restrict me and the way I live my life, but you can’t help feeling conscious of it if you go to the spa or pool or on holidays, places where your clothes come off.

Over the years I have been treated with everything, from light therapy to steroids, which have worried me because I have seen my skin become thinner and thinner. I feel lucky that my skin has never ruptured, but it does look older than it should because of all the steroid use.

I have been concerned for some time over the long-term side-effects of steroids but in my experience doctors don’t understand how ghastly psoriasis can be and they tend to just give you steroids over and over again.

Then I was told about Soratinex and thought I’d give it a go – at least it didn’t have any steroids in it. The results have been incredible. After just three weeks I saw the most amazing change you could possibly imagine.

I had it on my scalp and that has completely cleared up. That is important for me because when it is there, you tend to shed all this scaly stuff, but now that’s gone and I’m almost completely clear everywhere else.

I simply could not believe something with so many natural ingredients could have such a positive effect. It has changed my life.

 

‘I had mild psoriasis on the scalp since my teenage years.  It was scaly and very itchy and my then doctor prescribed the steroid cream Betnovate. It went away but then came back when I was at university and carried on for most of my life on my scalp and behind my ears.

Mrs Eileen McNeill, 63, a retired teacher from Enniskillen, Northern Ireland. Married with two grown up children.

‘Then about 10 years ago it increased in severity and spread to my elbows, arms, lower legs, a couple of patches on my face and quite a lot on my elbows. I didn’t let myself become depressed over it, but it was frustrating cosmetically – I would often wear dark tights instead of skin-coloured and I was always looking for long-sleeved dresses to cover my elbows.

‘I tried everything the doctor gave me as well as everything I could find on the market, but nothing worked. I went privately to see a dermatologist but the course of treatment he prescribed was also ineffective. One doctor told me I’d have it for life, and even though you know the doctor is probably right, it isn’t the sort of thing you want to hear.

‘I was always Googling psoriasis to see if I could find any new treatments and one night in one of the forums of the Psoriasis Association, where people share information about treatments, I saw that one man had left a very short post simply saying Soratinex was brilliant.

‘At first, I was put off by the cost – it was approximately £90 – but I was very drawn to the fact that it did not contain steroids, which is a big plus, and so my husband told me to give it a go. It is in three parts, the gel, cream and oil and you have to have time and patience to carefully follow an eight-week regimen, applying all three twice a day. I did, and within just two weeks I was seeing an obvious improvement.

‘By six weeks it was almost gone and I was thinking about stopping, but FRANKL Pharma customer services had been giving me great advice and support and said I must finish the eight-week course. They were very helpful.

‘I finished the course and it cleared up completely. Even blue-ish marks on my arms from using steroid creams eventually disappeared.  I was absolutely delighted and still am – it really is fantastic stuff. I have been clear now for about a year and just use a little bit of the oil on my face and elbows.

‘I tell everyone I can about Soratinex because I’d like them to enjoy the success I’ve had with it.’

 

‘They say stress can bring psoriasis on, and in my case it did.  It spread all way down both my legs below the knee and went to my elbows and the patches grew bigger and bigger. It was red raw and very sore.

Marie Norris, 52, a child minder from Northolt, west London

 ‘I first got symptoms of psoriasis about five years ago. I only had a small patch on my leg at the start. But then three years ago – December 27 2014 – my daughter, Faye, was killed in a car crash. She was just 34.

 ‘They say stress can bring psoriasis on, and in my case it did.  It spread all way down both my legs below the knee and went to my elbows and the patches grew bigger and bigger. It was red raw and very sore.

 ‘I stopped wearing skirts or anything short. I even covered up on holiday because you could see people looking and it was very embarrassing. My GP prescribed corticosteroid creams but they didn’t work and so I was eventually referred to a dermatology specialist who prescribed something even stronger.

 ‘Eventually, I ended up on the Soratinex trial and I’m delighted with the way things are going. As soon as I started using it I felt better. I’d say it’s about 50 per cent better and it’s improving all the time. The patches are still there, but they’re much less inflamed and they feel so much better.

 ‘I feel much more confident and if the weather was warm enough, I think I’d be able to wear something short again. I’m going to carry on with the treatment and I’ve been recommending it to lots of other psoriasis sufferers. I think it’s fantastic.’

 

  ‘When I was given the Soratinex oil, gel and cream as part of the trial, I’d already thought nothing would work, but this did. I put it on twice a day and soon began to see a difference. Now it has gone and I’m hoping it stays that way.

Mr Sritharan Ratnaswamy, aged 61, an accountant from West London.

Married with two grown-up daughters

 ‘I first had psoriasis about four or five years ago. It is all over my body to a greater or lesser extent – the severity of it seems to come and go and obviously when it is all over I feel pretty miserable.

 ‘I’ve been prescribed oral and topical medication and feel like I’d tried everything from methotrexate tablets to Epaderm cream and Balneum bath oil to topical steroids including Dovobet and Dovonet, but nothing seemed to have worked. I also had puva treatment – ultraviolet light therapy – a few years ago.

 ‘When I was given the Soratinex oil, gel and cream as part of the trial, I’d already thought nothing would work, but this did. I put it on twice a day and soon began to see a difference. Now it has gone and I’m hoping it stays that way.

‘Because it was on my arms and legs, I’d been covering up all the time and wearing a tracksuit outside but now I’ve been able to start wearing shorts and short sleeves again, and I feel so much happier.

 ‘It might not work for everyone, but it has worked for me and I would recommend other sufferers to give it a try.’